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Currently, you can access the following clinical trials being conducted worldwide:
Clinicaltrials.gov identifier NCT03927092
Recruitment Status Completed
First Posted April 25, 2019
Last update posted April 29, 2019
Multiple Sclerosis Knowledge Questionnaire (MSKQ) is a 25-item self administered questionnaire assessing a patient's level of knowledge regarding multiple sclerosis (MS). Turkish translation of the questionnaire was prepared and participants in the annual patient education seminar in the investigators' university hospital were asked to answer these questions before and after the seminar.Their results were analysed to assess their level of knowledge about their disease.
Multiple sclerosis knowledge questionnaire was developed in Italy (1) and was reported to be useful in measuring patients' level of knowledge about their disease. The English version of the questionnaire was translated into Turkish by three physicians than back translated into English by two separate linguists. Initially 5 MS patients were asked to answer this first version of the questionnaire and report any difficulties in understanding the items. Their feedback was used to give the questionnaire its final shape. For the validation stage, patients that were diagnosed as having MS and who attended the annual MS patient education seminar were enrolled into the study. They answered the questions twice, before and after the seminar. Their answers were analysed to measure their level of knowledge about their disease.
|: Multiple Sclerosis patients
Patients that attended an annual patient education seminar at the investigators' university hospital were asked to fill out the Turkish version of the Multiple Sclerosis Knowledge Questionnaire
Other: Multiple Sclerosis Knowledge Questionnaire
A 25-item self-administered questionnaire
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, , Learn About Clinical Studies.-->
- Diagnosed as having Multiple Sclerosis
- Attends the annual patient education seminar at the investigators' university hospital
- Older than 18 years of age
- Can read and write
- Does not accept to answer the questionnaire
- Unable to answer the questions due to a cognitive impairment
Principal Investigator: Ece Cinar, M.D. Ege University School of Medicine
Study Director: Yesim Akkoc, M.D. Ege University School of Medicine
Principal Investigator: Funda Calis, M.D. Ege University School of Medicine
Principal Investigator: Musa Baklaci, M.D. Ege University School of Medicine
Principal Investigator: Ozgul Ekmekci, M.D. Ege University School of Medicine
Principal Investigator: Ayse N Yuceyar, M.D. Ege University School of Medicine
Giordano A, Uccelli MM, Pucci E, Martinelli V, Borreani C, Lugaresi A, Trojano M, Granella F, Confalonieri P, Radice D, Solari A; SIMS-Trial group. The Multiple Sclerosis Knowledge Questionnaire: a self-administered instrument for recently diagnosed patients. Mult Scler. 2010 Jan;16(1):100-11. doi: 10.1177/1352458509352865. Epub 2009 Dec 7.